FLARES OF FIBRO

FLARES OF FIBRO from the "Faith, Family & Fibro Blog" - http://www.faithfamilyfibro.com/2010/03/flares-of-fibro.html

I am not dependable.

I can not plan anything.

I break dates.

I cancel appointments.

I forget to go somewhere.

I forget to do something.

I tell my kids I can't play.

I tell my husband I can't play.

I can't always go to the grocery store even if we need something.

I can't always do anything but wake up.

I hate asking for help but I need it.

I want to get everything done like a "normal" person.

I am not procrastinating.

I am not lazy.

I am not depressed.

I am not stupid.

I have fibro and I hate it and it has changed my life....

but I have to embrace it....

because of the blessings it has brought me.

Great Fibromyalgia Links

1.  A blog called "Faith, Family, & Fibromyalgia" - http://www.faithfamilyfibro.com/search/label/Fibromyalgia

2.  Fibromyalgia Aware Magazine - http://www.fmaware.org/site/PageServer?pagename=resources_awareMagazine

3.  National Fibromyalgia Association - http://www.fmaware.org/site/PageServer

4.  Info on About.com - http://chronicfatigue.about.com/

5.  Support group on Facebook - http://www.facebook.com/group.php?gid=59534338401&v=wall

What's Going On? A Simple Explanation of Fibromyalgia Making Sense of a Complex Disorder, For Those Who Don't Have It

Fibromyalgia is a real condition.  Just as real as high blood pressure, cancer, etc.  I hate it when I hear that someone thinks it is made up, or that someone is lazy, or they should just get over it and improve their life.  This article does a good job of explaining what fibromyalgia is.  I hope you take the time to read it.

http://chronicfatigue.about.com/od/whatisfibromyalgia/a/understandfibro.htm

 

Pam  

(this is how the above article ends and is the punch line for me... but please read the whole article)

Fibromyalgia In a Nutshell

A lot of illnesses involve one part of the body, or one system. Fibromyalgia, however, involves the entire body and throws all kinds of things out of whack. As bizarre and confusing as the varied symptoms may be, they're tied to very real physical causes.
Fibromyalgia can take someone who is educated, ambitious, hardworking and tireless, and rob them of their ability to work, clean house, exercise, think clearly and ever feel awake or healthy.

• It's NOT psychological "burn out" or depression.
• It's NOT laziness.
• It's NOT whining or malingering.
• It IS the result of widespread dysfunction in the body and the brain that's hard to understand, difficult to treat, and, so far, impossible to cure.

The hardest thing for patients, however, is having to live with it. Having the support and understanding of people in their lives can make it a lot easier.

Going Through The Motions

This video (http://www.youtube.com/watch?v=r_rmCeAzqKc&feature=related ) is better than the one posted below.  Very touching.   Shows Matthew West's struggle.

This might hurt
It’s not safe
But I know that I’ve gotta make a change
I don’t care
If I break
At least I’ll be feeling something
‘Cause just ok
Is not enough

Help me fight through the nothingness of life

I don’t wanna go through the motions
I don’t wanna go one more day
Without Your all consuming passion inside of me
I don’t wanna spend my whole life asking
What if I had given everything?
Instead of going through the motions

No regrets
Not this time

I’m gonna let my heart defeat my mind

Let Your love
Make me whole
I think I’m finally feeling something

Take me all the way
Take me all the way
Take me all the way

Thoughts invade, choices are made, a price will be paid

It's a slow fade when you give yourself away
It's a slow fade when black and white have turned to gray
Thoughts invade, choices are made, a price will be paid
When you give yourself away
People never crumble in a day
Families never crumble in a day

The journey from your mind to your hands
Is shorter than you're thinking
Be careful if you think you stand
You just might be sinking

(from the song "Slow Fade" by Casting Crowns)

http://www.youtube.com/watch?v=xGHILmOHptY 

and this one made me cry this morning...

"Does Anybody Hear Her"

She is running
A hundred miles an hour in the wrong direction
She is trying
But the canyon's ever widening
In the depths of her cold heart
So she sets out on another misadventure just to find
She's another two years older
And she's three more steps behind

Does anybody hear her? Can anybody see?
Or does anybody even knows she's going down today
Under the shadow of our steeple
With all the lost and lonely people
Searching for the hope that's tucked away in you and me
Does anybody hear her? Can anybody see?

She is yearning
For shelter and affection
That she never found at home
She is searching
For a hero to ride in
To ride in and save the day
And in walks her prince charming
And he knows just what to say
Momentary lapse of reason
And she gives herself away

If judgement looms under every steeple
If lofty glances from lofty people
Can't see past her scarlet letter
And we never even met her

He is running
A hundred miles an hour in the wrong direction

Praise You in this Storm

Praise You in This Storm
words by Mark Hall/music by Mark Hall and Bernie Herms

I was sure by now,God, that You would have reached down
and wiped our tears away,
stepped in and saved the day.
But once again, I say amen
and it's still raining
as the thunder rolls
I barely hear You whisper through the rain,
"I'm with you"
and as Your mercy falls
I raise my hands and praise
the God who gives and takes away.

Chorus:
And I'll praise you in this storm
and I will lift my hands
for You are who You are
no matter where I am
and every tear I've cried
You hold in your hand
You never left my side
and though my heart is torn
I will praise You in this storm

I remember when I stumbled in the wind
You heard my cry to You
and raised me up again
my strength is almost gone how can I carry on
if I can't find You
and as the thunder rolls
I barely hear You whisper through the rain
"I'm with you"
and as Your mercy falls
I raise my hands and praise
the God who gives and takes away

Chorus

I lift my eyes onto the hills
where does my help come from?
My help comes from the Lord, the maker of heaven and earth
I lift my eyes onto the hills
where does my help come from?
My help comes from the Lord, the maker of heaven and earth

Chorus

Listen to the Voice of the Truth

"Voice Of Truth"

Oh what I would do to have
The kind of faith it takes to climb out of this boat I'm in
Onto the crashing waves

To step out of my comfort zone
To the realm of the unknown where Jesus is
And He's holding out his hand

But the waves are calling out my name and they laugh at me
Reminding me of all the times I've tried before and failed
The waves they keep on telling me
Time and time again. 'Boy, you'll never win!'
"You'll never win"

But the voice of truth tells me a different story
And the voice of truth says "Do not be afraid!"
And the voice of truth says "This is for My glory"
Out of all the voices calling out to me
I will choose to listen and believe the voice of truth

Oh what I would do to have
The kind of strength it takes to stand before a giant
With just a Sling and a stone
Surrounded by the sound of a thousand warriors
Shaking in their armor
Wishing they'd have had the strength to stand

But the giant's calling out my name and he laughs at me
Reminding me of all the times I've tried before and failed
The giant keeps on telling me
Time and time again "boy, you'll never win!
"You'll never win"

But the stone was just the right size
To put the giant on the ground
And the waves they don't seem so high
From on top of them looking down
I will soar with the wings of eagles
When I stop and listen to the sound of Jesus
Singing over me

I will choose to listen and believe the voice of truth

Prayer of Saint Francis

An alternate version is found in Chapter 11 (Page 99) of the "Twelve Steps and Twelve Traditions", a book published by Alcoholics Anonymous World Services, Inc.

Lord, make me a channel of thy peace;

that where there is hatred, I may bring love;

that where there is wrong, I may bring the spirit of forgiveness;

that where there is discord, I may bring harmony;

that where there is error, I may bring truth;

that where there is doubt, I may bring faith;

that where there is despair, I may bring hope;

that where there are shadows, I may bring light;

that where there is sadness, I may bring joy.

Lord, grant that I may seek rather to comfort than to be comforted;

to understand, than to be understood;

to love, than to be loved.

For it is by self-forgetting that one finds.

It is by forgiving that one is forgiven.

It is by dying that one awakens to eternal life.

Amen.

 

 

http://en.wikipedia.org/wiki/Prayer_of_Saint_Francis 

If we are the the Body, why aren't we doing/going?

“Sometimes I would like to ask God why He allows poverty, suffering, and injustice when He could do something about it.”

“Well, why don’t you ask Him?”

“Because I’m afraid He would ask me the same question.”

(Anonymous) -a quote from A Hole in the Gospel, by Richard Stearn, President of World Vision.

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Great read this morning - The Question I've Been Afraid to Ask - http://wearethatfamily.com/2010/03/question-ive-been-afraid-to-ask/

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When I see suffering in the world, I no longer say, "Where is God?" I say, "WHERE ARE GOD'S PEOPLE?!"

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 "God, why do you allow poverty?" "To allow my people to give of themselves"

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Lord, make me an instrument of your peace;

where there is hatred, let me sow love;

where there is injury, pardon:

where there is doubt, faith;

where there is despair, hope

where there is darkness, light

where there is sadness, joy

O divine Master,

grant that I may not so much seek to be consoled as to console;

to be understood, as to understand;

to be loved, as to love;

for it is in giving that we receive,

it is in pardoning that we are pardoned,

and it is in dying that we are born to Eternal Life.

Amen.

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