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Saturday, September 25, 2010

Great Fibromyalgia Links

1.  A blog called "Faith, Family, & Fibromyalgia" - http://www.faithfamilyfibro.com/search/label/Fibromyalgia

2.  Fibromyalgia Aware Magazine - http://www.fmaware.org/site/PageServer?pagename=resources_awareMagazine

3.  National Fibromyalgia Association - http://www.fmaware.org/site/PageServer

4.  Info on About.com - http://chronicfatigue.about.com/

5.  Support group on Facebook - http://www.facebook.com/group.php?gid=59534338401&v=wall

What's Going On? A Simple Explanation of Fibromyalgia Making Sense of a Complex Disorder, For Those Who Don't Have It

Fibromyalgia is a real condition.  Just as real as high blood pressure, cancer, etc.  I hate it when I hear that someone thinks it is made up, or that someone is lazy, or they should just get over it and improve their life.  This article does a good job of explaining what fibromyalgia is.  I hope you take the time to read it.

http://chronicfatigue.about.com/od/whatisfibromyalgia/a/understandfibro.htm

 

Pam  

(this is how the above article ends and is the punch line for me... but please read the whole article)

Fibromyalgia In a Nutshell

A lot of illnesses involve one part of the body, or one system. Fibromyalgia, however, involves the entire body and throws all kinds of things out of whack. As bizarre and confusing as the varied symptoms may be, they're tied to very real physical causes.
Fibromyalgia can take someone who is educated, ambitious, hardworking and tireless, and rob them of their ability to work, clean house, exercise, think clearly and ever feel awake or healthy.
  • It's NOT psychological "burn out" or depression.
  • It's NOT laziness.
  • It's NOT whining or malingering.
  • It IS the result of widespread dysfunction in the body and the brain that's hard to understand, difficult to treat, and, so far, impossible to cure.
The hardest thing for patients, however, is having to live with it. Having the support and understanding of people in their lives can make it a lot easier.

Going Through The Motions

This video (http://www.youtube.com/watch?v=r_rmCeAzqKc&feature=related ) is better than the one posted below.  Very touching.   Shows Matthew West's struggle.

This might hurt
It’s not safe
But I know that I’ve gotta make a change
I don’t care
If I break
At least I’ll be feeling something
‘Cause just ok
Is not enough
Help me fight through the nothingness of life

I don’t wanna go through the motions
I don’t wanna go one more day
Without Your all consuming passion inside of me
I don’t wanna spend my whole life asking
What if I had given everything?
Instead of going through the motions

No regrets
Not this time
I’m gonna let my heart defeat my mind
Let Your love
Make me whole
I think I’m finally feeling something

Take me all the way
Take me all the way
Take me all the way